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Miniere's Disease
Old 01-23-2019, 06:14 PM
  #1

If you are unfamiliar with this, it is an inner ear disorder that causes episodes of vertigo. I have a friend who is suffering from this and other symptoms like hearing loss, ear ringing, and imbalance. She has been to doctors but is seeing no relief. She is miserable. Anyone out there who can give some advice on some treatments to manage this?


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Old 01-23-2019, 06:20 PM
  #2

I’m so sorry for your friend, Menieres is supposed to be awful. I have those symptoms and was tested for it, but don’t have Menieres and I’m so relieved. I do have a different inner ear problem and some of the things I do can help her:
*very limited salt
*no caffeine
*no alcohol

You’re a good friend to ask.
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Old 01-23-2019, 06:35 PM
  #3

My mom has Ménière's - it was rough at first, but it's been about five years since her first attack and things have gotten better. She drastically reduced the amount of salt in her diet, and that made the most difference. I mean drastically. She's also on a low-dose diuretic. I hope your friend gets some relief soon.
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Old 01-23-2019, 06:36 PM
  #4

I read a few years back about some kind of back and neck stretch maneuver for this serious problem. Does this sound familiar to anyone?
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Old 01-23-2019, 06:37 PM
  #5

I am sorry to hear that. There is supposed to be a treatment provided by many physical therapists and chiropractors but not sure if it will specifically help with the disorder itself. It is supposed to help with vertigo.

Nancy


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Old 01-23-2019, 06:45 PM
  #6

My dad has it. He’s been to lots of specialists and there’s not much they can do to help him. He’s down to 30% of his balance, very little hearing...it’s sad.
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Old 01-23-2019, 07:15 PM
  #7

I know I claim acupuncture fixes just about everything (and I truly believe it does!), but here is an actual study showing good results (at least for the vertigo symptom) for Ménière's. It can't hurt to try and might help.


LINK
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Old 01-23-2019, 07:56 PM
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Zia, I’d be willing to try acupuncture for vertigo. How does one go about finding a reputable acupuncturist?
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Menierre's Disease
Old 01-23-2019, 08:06 PM
  #9

I’m currently being tested for this. My vertigo episodes can be so debilitating. I have ringing in my ears every day. Sometimes it’s so loud that I have to stop what I’m doing until the ringing stops. My left side of my body is affected. Left ear ringing, left imbalance.

Currently, I’m on a low dose diuretic and have had a hearing test.

I’m hoping it’s not Menierre's. I’ve read about a sound therapy for the ringing, but haven’t done much more than that.
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Old 01-23-2019, 08:15 PM
  #10

Quote:
Zia, I’d be willing to try acupuncture for vertigo. How does one go about finding a reputable acupuncturist?
I'd ask around because I like personal recommendations best. Mine is my kids' 3rd grade teacher's daughter. But, the links below should help steer you in the right direction, too. I would be dead if not for acupuncture. Dramatic? Yes. True? Also yes.

And check how much your ins co-pay is. Sometimes, cash prices are less than what ins covers.

LINK
or
LINK

7 Tips for Choosing an Acu


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Old 01-23-2019, 09:05 PM
  #11

Thank you, Zia. I saved all the links. I am going to try working with a Personal Trainer who focuses on correcting—in my case for balance. I start Monday and will see how that goes first.
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Vertigo
Old 01-24-2019, 03:53 AM
  #12

My mother suffered from problems with vertigo. I feel for your friend.
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I have Ménière’s
Old 01-25-2019, 04:38 PM
  #13

I was diagnosed with this almost 20 years ago. The first thing I can say is that this disease affects everyone differently. However, there are some things that help most people with this disease. She needs to go on a low sodium diet and find a dr that specializes in balance disorders. My Ménière’s got so bad at one point that I was having drop attacks (falling and passing out). I went to countless ENTs that claimed they knew how to treat this, but all of them would say eat less salt, try to relax when you’re stressed (seriously?!), and to just learn to live with it. I had to become my own advocate. I would constantly search the internet for treatments or support groups, and I found both! I ended up going to an otolaryngologist. He did numerous tests and determined that I would benefit from an endolymphatic shunt. The helps to keep the fluid off of my right ear, which is more severe than my left. I actually have bilateral Ménière’s, but most people just have it in one. He prescribed diazepam (Valium) and meclizind (antivert), and I take those when I have a dizzy attack. I also started going to a chiropractor on a regular basis (huge help!) and getting monthly therapeutic massages with someone that knows how to apply certain pressure points. I’ve never tried acupuncture, but I’ve read in support groups that this helps some people. The best thing you can do is just support your friend. I had people that I know thought I was just faking it or wanting attention because on the outside, I look okay. It can be a debilitating and isolating disease, but if she can find the right treatment and dr, she can learn to live with it and have a normal life. I wish her the best.
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