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CPAP adjustment
Old 09-25-2014, 01:12 PM
  #1

I've only used it for 4 nights and it's not going well. It's one with a humidifier and all, but the longest I've been able to wear it is not quite 2 hours. Besides the diagnosis of apnea, I was told I have swollen nasal passages and that's why I breathe through my mouth all night and this would help, but the pillow mask covering my nose makes me feel like I am suffocating. A few nights I have not been able to fall asleep and end up taking it off. The one night I did fall asleep (so exhausted) I woke up and had a panicky sensation--needed to get it OFF.

I've been reading and learned it takes patience and perseverance, can take up to a few months to get used to it. The advice encourages people having trouble to consult with the provider and make sure the mask fits, etc. I do wonder if it is too small, as it seems to press against my nose so much, but suspect it is a good fit. I tried using one of those nose strips that open up your passages with the machine, but it didn't help to make it any more comfortable.

I think some good advice was to desensitize through a series of steps when awake or relaxing during the day time--just the mask, with the straps but not over the head, with everything on in 20 minute periods, etc.

I suppose since it is free through my insurance I should really give it my best shot. But at this point I am feeling so negative; hate the way it looks, hate the way it feels, just hate it. I have read so many fabulous testimonials and I am tired of dragging through the day and often getting so sleepy.

I searched C-Pap threads and know there are several users on here! Please, I need some advice and encouragement!


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I have tried the
Old 09-25-2014, 02:05 PM
  #2

pilow mask several times and don't care for them. I have a larger mask that covers my nose and rest o my upper lip. It is the style I started with and not too many people use them any more. ResMed Mirage FX Nasal CPAP Mask It is a bit like "Darth Vader" and definitely not romantic.
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Old 09-25-2014, 02:34 PM
  #3

My husband just started on the machine. He was not at all comfortable with the nose mask. He is a mouth breather and just switched also to the "Darth Vader" one and is oh so much better!!!!�� His is the ResMed Quattro Air Mask.

Last edited by Trinia2; 09-25-2014 at 03:14 PM.. Reason: More information to add
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Mouth Breather Has a Suggestion
Old 09-25-2014, 02:49 PM
  #4

Hope is around the corner! Took me a week to get accustomed to CPAP sleep. Now, I can't sleep without it!

PLEASE consider going back to your provider for a different mask. The nose pillow mask is NOT one with which I could be comfortable. I second the PP's advice. Try a mask that covers your nose and rests on the area just under your nose. Picture a triangle that easily slips over your nose. SO comfy.

Hope you find a solution and are sleeping soundly soon!!
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Old 09-25-2014, 03:11 PM
  #5

Having a stuffed nose while wearing the cpap nasal pillows is one of the things that I had to overcome especially three yrs ago. I went to an ENT doc who along with my allergist gave me two kinds of allergy meds and various types of nasal sprays as well as nasal irrigation twice per day. I finally eliminated dairy and gluten from my diet and then I could finally breathe....during the day and at night. The pulmonary specialist had them set my machine at a variable pressure from 7 to 14 depending on if my nose was still stuffy I could have a 14 pressure or when my nose was totally clear it could be lower. My exact pressure is a 10. Maybe that type of variable pressure (I don't know if that is the correct term) could help you.


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Don't worry....
Old 09-25-2014, 05:09 PM
  #6

You will get used to it! I've had mine for a few years now, and I can't imagine sleeping without it now.

Yes, I still hate how it looks and usually try to put it on once my dh is sound asleep, but it helps me so much! I hadn't slept good for a long, long time, and I'm now sleeping most nights straight for 7 or 8 hours. I notice such a difference in my stress levels now. I am able to handle a whole lot more without being totally stressed out.

Give it some time. I found that if I wore it while reading or watching tv before I went to sleep, it didn't bother me as much. I did that for a few weeks when I first started. I'm sure it helped me to get used to wearing it, and while reading or watching TV, my mind was on something else.

You can do this, and you will be so thankful for the positive changes in your life. Keep trying.....
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Old 09-25-2014, 07:01 PM
  #7

I got mine about 6-7 weeks ago. It was definitely an adjustment. I had a sore nose for a few weeks and was breaking out at the bottom of my nose a lot. I was very frustrated! Now, I'm to the point that I have no soreness and no breakouts. I still hate the tubing and how I have to accommodate for that as I sleep, and wearing it when I had a cold was a real challenge, but I think it's worth it. I just went back for my re-eval, and found that my numbers are much improved.

Hope you find some success with it soon!
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Old 09-25-2014, 07:58 PM
  #8

I've had it and there are some nights when I still take it off. I can't sleep with it if I am SUPER congested because I too have the "suffocating" sensation" but after a few different trial and errors, I have found a mask that fits pretty well.

As PP suggested you need to find someone who you like and play the trial and error game with the masks...You need one that you like and that you feel comfortable with. There are so many out there. I personally hated the nasal passages but 2 of my friends LOVE them, I had a mask that I was "making do" with for a few years then had to switch Drs. and the provider conned me into trying a "brand new mask" that had just come out a few months ago and it's so much less bulky and lighter...

DO NOT give up for me every hour makes a difference in how I feel...Keep trying. If your provider doesn't help you- find a new one. I didn't know that many years ago and wish I did...
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Old 09-25-2014, 08:36 PM
  #9

Thank you ALL, so very much. Just what I needed to hear and have renewed motivation. I really appreciate all of your posts.
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cpap
Old 09-26-2014, 05:52 PM
  #10

Bless your heart! I've been on cpap for 5 years, and it has saved my life. While there certainly can be a learning curve, if you're truly struggling it's probably due to 1 of 3 factors: the wrong mask, the wrong machine, or the wrong settings. Masks are a VERY personal decision, and there's no way to know which one will work until you try it. I started with a Dreamweaver, which was wonderfully light. But I needed something to keep my mouth closed, so I switched to the InnoMed Hybrid. I LOVE this mask! But the best mask won't help if your machine is the wrong one. Most people benefit from an auto-adjusting machine, which is the most commonly available type now. Some people prefer a straight-cpap with exhale relief, and others need a bipap. If the machine isn't the right one it's MUCH harder to get effective therapy. Also, check your settings; contrary to what you've probably been told, you can adjust the pressure yourself, and it's quite likely that making some adjustments there can bring you relief. Don't give up, you can make this work!


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Old 09-26-2014, 07:04 PM
  #11

Update: last night, after reading all of the encouragement I decided to read with it pn for an hour or so in bed to start a desensitization process. Guess what! Propped up made a HUGE difference. It was like night and day--able to breathe normally and was comfortable Once I got drowsy, took one of the three pillows away and tried two. Did not fall fully, deeply asleep but was able to doze for a couple of hours before taking it off and going back to the one pillow I usually sleep with. I like a flat pillow but am more than willing to go with two if if helps me cope with the mask. I think this might be solution; will see how tonight goes.

Later: last night a bust. Oh well, will keep plugging away (so to speak, ha).

Last edited by MiddlingAZ; 09-27-2014 at 08:14 AM..
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Hang in!
Old 09-27-2014, 02:48 PM
  #12

Hoping that tonight goes better for you. It sounds like trial and error is the way to go until you get it right. Bummer for you now, but will be worth it if you DO get it just right.
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Bed
Old 09-28-2014, 07:47 PM
  #13

I also need a CPAP machine, but what has helped me was getting a bed that can have the head raised. I would recommend that, along with a machine.it isn't easy getting use to a machine.
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