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Rlyndecker update/thoughts
Old 07-21-2019, 10:27 PM
  #1

Iím having quite a difficult summer emotionally while trying to put on a happy face and be active for Gabriel. Sorry, I havenít updated but there hasnít been much to say until last week.

She finished her hopefully last round of chemo just over a week ago or two weeks ago (I lost track). Unfortunately she had her normal bad reaction to the Friday Chemo and then got pneumonia. She has been on two rounds of antibiotics and now she canít eat. 😢 Not sure what that is related to. She goes for a Pet Scan tomorrow (Monday) which will tell her if her body is healthy enough for a stem cell transplant. There is a slight chance she can donate her own, but if not they found someone on the registry who is a 100% match. My older sister was like a 75% match and they wonít test me as we are too identical being her identical twin (I still donít get it, I would think since I am healthy you would want identical, but whatever). Friday she finds out the results.

Unfortunately, I have not seen her since Fatherís Day. She is an hour and a half away without traffic and most of the time Gabriel canít go due to her not feeling well and him carrying viruses (her Dr said that toddlers carry viruses, but donít always get sick from them??).

As much as the stem cell transplant recovery will suck for her, it should help her and she might possibly be able to go back into the classroom by mid-year. So please pray or think positive thoughts for her. I know the cards meant a lot. Thanks.


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Old 07-21-2019, 10:52 PM
  #2

Thanks for the update! She is never far from my thoughts and I hope there is some good news to share with us soon. It's good to keep her away from germs, but I'm sure it's so hard on you to not get to see her very often.
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Old 07-22-2019, 02:09 AM
  #3

Sending prayers for strength and healing.
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Thank you for the update
Old 07-22-2019, 02:59 AM
  #4

I will pray for her.
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Old 07-22-2019, 03:00 AM
  #5

Iím so sorry she is going through this. Sending positive thoughts for recovery


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Old 07-22-2019, 03:01 AM
  #6

Sending positive vibes that the PET scan confirms she can get a stem cell transplant!
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Old 07-22-2019, 03:19 AM
  #7

Sending prayers!
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Old 07-22-2019, 03:21 AM
  #8

Thanks for updating! I think of her often.
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Old 07-22-2019, 03:52 AM
  #9

Thank you for the update. Prayers being sent.
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Old 07-22-2019, 04:51 AM
  #10

Prayers for your sister and your family and for good results on all her tests and procedures.


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Old 07-22-2019, 06:15 AM
  #11

Praying that she feels better soon and that she gets good results from the Pet Scan so she can get the treatment she needs!
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Old 07-22-2019, 06:31 AM
  #12

Prayers for her and you too.
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Old 07-22-2019, 06:51 AM
  #13

Thanks for update. Can we send her cards again? Adding you all to my prayer wheel.
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Sending prayers
Old 07-22-2019, 06:54 AM
  #14

Sending prayers
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Old 07-22-2019, 07:00 AM
  #15

Sending lots of positive thoughts!
Wishing I could do more...
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Old 07-22-2019, 07:17 AM
  #16

We will be praying for sure. Please pass along the message the her PT family is thinking of her
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Thanks for
Old 07-22-2019, 07:26 AM
  #17

the update. She is in my prayers.
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Old 07-22-2019, 07:28 AM
  #18

Thank you so much for updating us. I am still praying for your sister and will continue to do so.
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update
Old 07-22-2019, 08:07 AM
  #19

Thank you so much for the update. Will continue to pray.
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Old 07-22-2019, 08:13 AM
  #20

Sending prayers for both of you during this difficult time.
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Old 07-22-2019, 08:36 AM
  #21

Can't eat or no appetite? I hope she gets some answers quickly and that whatever shows up is quickly fixable.

With the pneumonia issue, it's likely that the chemo has lowered her immunity levels. If there are ongoing issues with infections, she might discuss with her doctor whether they might want to test her immunoglobulins. If they are too low, it's possible to treat with intravenous immunoglobulins (although there is currently a nationwide shortage of IVIG).

I hope there is good news to share soon.
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Old 07-22-2019, 09:04 AM
  #22

Thanks for the update. Keeping you and sis in my prayers.
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Old 07-22-2019, 09:54 AM
  #23

Oh heavens, your sis certainly is dealing with some serious health issues. It's scary to see how quickly pneumonia can surface and how tough it can be to fight. Sending good thoughts to you and your sister for improved health and conquering this cancer.
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Old 07-22-2019, 12:11 PM
  #24

I appreciate your update. Our thoughts are with you!!
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Praying for your
Old 07-22-2019, 01:31 PM
  #25

sister on a daily basis. I hope Friday brings good news and she feels better soon.
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Thank you for update.
Old 07-22-2019, 02:19 PM
  #26

Dear sister remains in my prayers.
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Old 07-22-2019, 02:25 PM
  #27

Sending prayers. I hope she has a quick recovery.
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Old 07-22-2019, 02:43 PM
  #28

Thanks for the update. I think of both of you often and wish your sister a quick return to perfect health
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Old 07-22-2019, 03:43 PM
  #29

Thank you for the update. Sending healing thoughts her way....
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Thanks
Old 07-22-2019, 04:47 PM
  #30

TAOEP, I will see if they test the immunoglobulins.

She was able to do the PET Scan by giving her oxygen. Evidently that helped a lot, but by the time she got home, it wore off.

I am sure she will appreciate any cards. Will need ideas for her while she is in the Hospital and home bound for so long. She is already bored.

Thanks, will update Friday night or Saturday.
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Old 07-22-2019, 05:00 PM
  #31

I have been praying for her everyday and will continue. Thank you for updating!

I will send another card.

(((HUGS))) and prayers for you too!

Nancy
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Old 07-22-2019, 05:44 PM
  #32

Thanks for the update. Thinking of her and you.
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Old 07-22-2019, 06:12 PM
  #33

Thanks. Reminded me to send another card. I am thinking of your family.

It is weird that a twin isn't even in the realm of donating.

I am wondering if you could arrange care for your son for a day or two and go visit. I know I would love to have my sister with me. If I had a sister.
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Old 07-23-2019, 08:03 AM
  #34

Sending positive energy to you and your sister. I hope you get more positive news really soon.
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